Like everyone out there that’s faced with cancer, I’ve headed to the Internet for information. When I first started writing this I was surprised to see that many people were getting different treatments. I soon realised that this wasn’t just because they presented with different personal conditions, but that they were being treated in different years and in different locations. Technologies and techniques change over time, and recommended protocols and service offerings differ between countries and regions. It takes a while to find sites and blogs that present information that is truly relevant to one’s personal situation.
Thanks to all of those who take the time to build sites that present information that describes accurately what activities are planned or happening, where the activities are happening, and when they are happening.
- Radioactive Raz: from a UK survivor of cancer of the tonsil who first thought she had a problem in July 2018
- Today my coffee tastes like Christmas in Costa Rica: Dani Akrigg in Wales describes her experiences with base-of-tongue SCC. The link here will take you directly to her post on using acupuncture to deal with xerostomia.
- Tom B at Livestrong
- Steve’s Story: Johns Hopkins
- Vision of Hope 33: the tale of a survivor of multiple cancers, starting first with base of tongue, with treatment starting in 2013
- The Food Manifesto: a person who really likes food has to deal with base of tongue cancer, treatment starting in late 2018
- Denyse Whelan started treatment for head and neck cancer in October 2017
- Wendy Martyna: writer recounts the tribulations of dealing with her base of tongue cancer for which she was diagnosed in December 2016
- Radiotherapy for Throat Cancer – My Journey: Ian in Scotland received his diagnosis of tonsil cancer in June of 2018
- My Cancer Journey: Since December 2015, Michael Becker in Pennsylvania has done an exceptional job of reporting the details of his experiences dealing with head and neck cancer.
- Gamma Ray Gary: Gary started blogging about his tonsil cancer in June 2014. His is a very complete blog that continues until January 2018.
- Canadian Cancer Society
- BC Cancer Agency
- British Association of Head & Neck Oncologists
- HPV and p16 testing
- The epidemic of throat cancer sweeping the industrialized world: column in the Santa Cruz Sentinel discussing HPV, throat cancer, treatments, and prevention
- Update July 16, 2019:
- Update July 30, 2019
- Check out this page by the American Speech-Language-Hearing Association for information about adult dysphagia (swallowing problems).
- The following is an excellent editorial article from Annals of Translational Medicine. It provides a very clear description of chemo treatments for OPSCC.
- Recent advances in the understanding and management of oropharyngeal cancer (August 2018) is an excellent overview of OPSCC treatments over the past two decades, with a focus on what is happening currently
- Treatment de-intensification strategies for head and neck cancer (November 2016)